The 'locked door' of neurological rehabilitation? The ...

The 'locked door' of neurological rehabilitation? The ...

The locked door of neurological rehabilitation: using life histories to capture the complexity of rehabilitation following acquired brain injury Jonathan Harvey The Open University [email protected] Format Part auto/biographical Part ethnographic Semi-structured interviews

Traumatic brain injury (TBI) and Stroke survivors Sudden onset neurological injuries Acquired brain injury, spinal cord injury etc. NOT progressive neurological pathologies such as MS, motor neurone disease, dementia etc.

Life histories Semi-structured Long-term interviews focus Voluntary organisations Volunteering - seen as an ally - enables assessment of capacity Doors as Barriers for disabled people Not

just abstract. Locked doors are found throughout neuro-rehab units. Represent and reinforce limits of disabled bodies (Barton and Oliver 1997; Barnes, Mercer and Shakespeare 1999; Tregaskis 2001; or many other social model accounts) -Medical gaze -Us versus them Analysis Emancipation Much disability research driven by need to be emancipatory (Barnes

2002;2003) Who the hell am I? Analysis - biopower? Constantly under observation of medical experts. Activity restricted, monitored and reviewed by others. the acts, behaviours, and practises that emerge as problematizations [such as disability] within certain networks of

knowledge are dynamically linked to forms of power that turn individuals into subjects by tying them to identities (Tremain 2005: 14) Can this surveillance be escaped? Does this underestimate disabled people? (Davis 2010; Hughes 2005; 2007) Analysis - Fluidity Remain open to engage with data

Growth and change (Deleuze and Guattari 1987/2004) - Rhizome Nomadism (Braidotti 1991; 2003; 2006; 2011) - Figurative - fluidity Is the locked door of neurological rehabilitation escapable? Fluidity

could help to escape negative conceptualisation Time future destiny? Community rehabilitation Social re-integration Extent of professional gaze Individual choice!!!!!!!!!!!!!!!!!!! References

Barton,L and Oliver,M (1997) Introduction: The Birth of Disability Studies in Barton,L and Oliver,M Disability Studies: Past, Present and Future Leeds, The Disability Press. Barnes,C (2002) Emancipatory disability research: project or process? Journal of Research in Special Educational Needs 2 (1), 1-13. Barnes,C (2003) What a difference a decade makes: reflections on doing emancipatory disability research Disability and Society 18 (1), 3-17. Barnes,C, Mercer,G and Shakespeare,T (1999) Exploring Disability, A Sociological Introduction

London, Polity Press. Braidotti,R (1991) Patterns of Dissonance: A study of women in contemporary philosophy Cambridge, Polity Press. Braidotti,R (2003) Becoming woman: Or sexual difference revisited Theory, Culture and Society 20 (3), 4364. Braidotti,R (2006) Transpositions. Transpositions. On nomadic ethics Cambridge, UK: Polity Press. Braidotti,R (2011) (2nd ed) Nomadic Nomadic subjects: embodiment and sexual difference in contemporary feminist theory Chichester, Columbia University Press. Davis,L,J (2010) The End of Identity Politics: On Disability As an Unstable Category in (3rd ed) The Disability Studies Reader Oxon, Routledge. Deleuze, G. and Guattari, F. (1987) (reprinted 2004) A thousand plateaus:Capitalism and schizophrenia. London, Continuum. Hughes,B (2005) What Can a Foucauldian Analysis Contribute to Disibility Theory? in Tremain,S Foucault and the Government of Disability University of Michigan, University of Michigan Press. Hughes,B (2007) Being Disabled: Toward a Critical Social Ontology for Disability Studies Disability

& Society 22 (7) 673-684. Tregaskis,C (2002) Social Model Theory: the story so far... far... Disability and Society 17(4), 457-470. Tremain,S (2005) Foucault, Governmentality and Critical Disability Theory in Temain,S Foucault and the Government of Disability University of Michigan, University of Michigan Press.

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